| Location | Ellesmere Port |
| Age | 3 years |
| Cause of Death | Genetic Condition |
| Date of Birth | 28/09/2005 |
| Date of Death | 07/10/2008 |
| Visitors | 9,486 since 09/11/2008 |
| Creator |
Mckenzie was just 3 years old when the angels took him to play he was the most beautiful brave special little boy in the world, he was my life everything i did was for Mckenzie.
Mckenzie was 5 weeks early when he was born as soon as i gave birth to him i knew somthing was wrong he was a nasty blue colour the midwife played it down but i knew, he then stopped breathing alarms rang and all of a sudden my son was taken to the special baby unit.
As soon as we could myself and my husband Ian rushed to our baby we were told his lungs were a bit wet and he needed oxygen to help him, Mckenzie was 6lb 5oz at birth so we wasn't tiny he grew stronger by the day but started having Apnoeas which meant he would just stop breathing the staff told me this was normal for babys who was born early and it would stop soon.
We took Mckenzie home when he was 19 days old finally are family were all together his brothers were so happy we all were, Mckenzie used to go blue alot and make strange sounds this was worring but doctors said it was fine.
When Mckenzie was 6 weeks old I was sitting with him having cuddles when i looked down he was blue and not breathing i stood up and ran outside with him as i thought the cold air would make him breath it didn't i came back in and told Ian to phone for an ambulance i started to blow into by little boys mouth minutes seemed like hours but after 3 minutes by son took a breath my mum was called to take my other sons when she came in she couldn't look at Mckenzie i told her he was ok he was breathing, the ambulance came and took us to hospital.
On the way there it sunk in what i had to do to my own son it was so scary what if that happened again all of these what if's were going around in my head.
The doctors did all types of tests but there was no reason for him to stop breathing, i was given an apnoea alarm which would sound when Mckenzie was not breathing what a god send this was as he would stop breathing up to 40 times a day. He then became oxygen dependant.
This carried on, then i woke up when Mckenzie was just under 5 months old he was fitting in the cot beside me we took him to hospital again he fitted for 65 mins. Doctors started him on medication to help but nothing helped we were living our life on a knife edge because now we had to not only deal with his apnoeas we had to deal with the seizures aswell, as the time went on he was havng between 30-40 seizures a day plus his 40+ apnoeas.
We where told when Mckenzie was 8 months old that he had a Neuro Metabolic degenerative disorder they didn't have a name for it as there were no other children ever known to have this, but what they know was they couldn't treat him they didn't expect him to live to his 1st birthday but my big brave boy did.
Everything was a battle for us all Mckenzie always struggled to feed and was very sicky so a tube was put in his tummy to help with the feeding, Mckenzie had alot of operations to try to make his life as comfortable as possible.
His health got worse just before his 3rd birthday we were told that Mckenzie could pass away at any time, one of the hardest things i had to do was listen to the doctors and take it in, but i think i knew deep down that he was getting worse he was having episodes of stopping beathing for over 30 minutes at a time it was part of my daily routeen to use a bag and mask to get him breathing again. Then i had to try to explain to Mckenzies brothers that one day they will have to say good bye to there little brother i wanted to be honest with Billy and Lloyd and not lie to them, but on the other hand how was they going to understand when i didn't understand myself, Billy 8 years old understood more than 5 year old Lloyd, Lloyd asked could we have another baby this time not a poorly one this hurt so much myself and Ian tried our best to answer the questions our sons were asking this broke my heart. No one should have to do that no parent should have to go through that.
I know we don't live forever but i was excepting my little guy to live for a lot longer than he did.
On his birthday he stopped breathing for 55 mins just as his party was starting we managed to get him breathing again but i knew that in his own way this was my warning from him to tell me to take him to Claire house childrens hospice as i didn't want him to pass away at home with his 2 big brothers Billy & Lloyd there i didn't want them to be scared every time they walked into his room.
I took him to Claire house later that day we filled his room full of his birthday stuff, nurses didn't think he would last the night but my boy did he battled on for 9 days he passed away in my arms i told him all the things i wanted him to know, i told him how much he will always mean to me and that i will never ever stop loving him, he stayed in Claire house till the day of his funeral, the day before his funeral i washed and dressed my special boy i dressed him in his new clothes which i brought him for his birthday he looked so perfect as he always did, i made sure his hair was just right because everyone that came to see him always felt the need to touch it and mess it up, i then laid him in his special twinkle twinkle casket with all his things i had put in to keep him company. This was really hard for me to do but i was the first person to hold and kiss Mckenzie and i wanted to be the last.
Two white horses took him on his final journey it was beautiful i wanted my little guy to have the best send off possible and he did.
Mckenzie touched alot of peoples hearts, i know he couldn't do all the things we take for granted like walk and talk but he was the most amazing little boy you could ever wish to meet and i was proud to have had the chance to be his mummy.
I love Mckenzie so much and i always will, life without him is really hard i miss him that much it hurts, knowing that i can't see that smile that was worth a million xxx
Its been over 9 months now since Mckenzie went to play with the angels my days are just so different now, Bill and Lloyd seem to be coping well they are amazing boys, we talk about our special brave boy every single day and i visit the cemetery every day to have a little chat with my boy.
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I miss you so much Mckenzie mummy will never forget you, you hold a very special piece of my heart that piece nobody will ever be able to fill, love always and forever Mummy XxXxX
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New Years Prayer
Dear Lord,
In the new year, we pray
that You will guide us each new day
in paths that are pleasing to You.
Lord, the new year gives us another chance
to rededicate our lives to You,
to study Your Word
so that we know right from wrong
and to act in accordance with Your commands.
Thank You for the sense of
direction, purpose and peace we get
from aligning our lives with Your Holy will.
We pray for the strength and the will to obey You
each and every day of the new year,
and when we fail, we pray for Your mercy,
Your compassion, Your grace and Your love.
Help us in the new year to be Your faithful servants.
In Jesus’ name we pray, Amen.
By Joanna Fuchs
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Happy New Year Big Guy ♥ ♥ ♥
Hi babes just came on here to wish you a early happy new year we missed you so much at Christmas babes, the boys were made up with all their new stuff.
We are off out tonight to my friends house we will sent some fireworks up to you.
We all miss you so very much son you make sure you have a fab night tonight up there with all your friends and family who are with you, be a good lad son.
We love you more than words could ever say you hold a special place in my mind.
Love you always and forever your Mummy XxXxX ♥ ♥ ♥
HAPPY NEW YEAR
♥[Μ Μ Μ²HΜ Μ²][Μ Μ Μ²AΜ Μ²][Μ Μ Μ²PΜ Μ²][Μ Μ Μ²PΜ Μ²][Μ Μ Μ²YΜ Μ²]β [Μ Μ Μ²NΜ Μ²][Μ Μ Μ²EΜ Μ²][Μ Μ Μ²WΜ Μ²]β [Μ Μ Μ²YΜ Μ²][Μ Μ Μ²EΜ Μ²][Μ Μ Μ²AΜ Μ²][Μ Μ Μ²RΜ Μ²] ♥
take my love into 2012 with you always
angel and sleep peacefully,
Love Bev,Steve,Beth and Sam x x x x
Mr Man ♥ ♥ ♥
Hi babes well its nearly Christmas and i thought i would drop you a line to let you know how much we all miss and love you.
Time goes by so quickly this time 4 years ago you were being a little monkey in Alder hey waiting for you trache operation am so glad you had that operation it made the last 9 months of your life much more comfortable.
This year your big brothers wanted a posh scooter for Christmas along with lots of other things you know what they are likes big guy. Me and daddy have made sure they both have a present from you as we do every year.
The boys still talk about you all the time, daddy has put all lovely lights all around the decking outside your room.
I love you more than you will ever know and miss you so very much.
You be a good boy and watch over us son.
Love you always and forever your Mummy XxXxXxXx
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It's Anthony Feci's 3rd. BIRTHDAY on December 27 at Noon in Heaven's Garden and you're invited.
There will be Angel Food Cake with strawberries, Balloons, Games and lots of fun. Hope you can come.
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Mr Man ♥ ♥ ♥
Hi babes thought i would drop you a line to let you know i am thinking about you loads, three years ago tomorrow (the 17th) was the day those lovely white horses took you on your final little trip. Another day i would never ever be able to forget even though it was a bit of a blur.
That means 3 years ago today was the day mummy got you all really in your trendy new clothes and lay you in your twinkle twinkle coffin, i made sure your hair was just so like always you looked handsome babes.
It was such a difficult thing to do but i kept thinking i was the first person to hold you so i had to be the last aswell.
I am so proud of you babes, i miss you more than you will ever know.
Love you so very much Mr Man ♥ ♥ ♥
Mummy XxXxXx
Mr Man ♥ ♥ ♥
Well matey today is nearly over now and i must say its been a hard day to get through.
Your flowers were lovely i got you your grave looked lovely this morning when me and daddy went, Nannie has put some new chimes there for you.
All the lovely things people put on facebook really got to me it shows they all care, your godmother Auntie Ash put a really tearful piece on there i sobbed babes.
Everyone who knew you misses you like mad son.
I miss you so very much love you always and forever your heart broken mummy xXxXx
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XXXX Happy Angelday Sweetheart XXXX
Thinking of you on your special day angel
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For a special angel on your special day
god bless you and your family
love Lyn and family
xxxxxx
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with love from your angel Friend
angel Keeley
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Mr Man ♥ ♥ ♥
3 years babes i just cant believe it, it seems like yesterday its just so very clear in my mind. Everything about that morning plays on my mind.
My life changed so much the very minute you left me,
You know son i hope you are up there watching down on us and proud to tell your little mates who we are, cuz we are so very proud of you babes, your big brothers as you know play football now, i am so proud of them when they score they come off the pitch and say that one was for Kenzie.
You keep smiling son, be happy enjoy everything you do and you just remember we miss you more than you will ever know, I love you so very much love always Mummy XxXx
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